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This is a recording of Professor Sara Ryan's Inaugural Professorial Lecture, titled "How the hell did we get here and what are we going to do about it? Learning disability and the lingering…
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Advice for Pwle: Encouraging them to talk to someone they trust rather than worrying alone. Minimising stress: address concerns early and speak to the right person.
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Hostel placements can exacerbate a person’s substance use – but they are off the streets. Working in homelessness: about as many people die as those who recover. In contrast to PC staff,…
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Need policy change -and greater recognition of the links between trauma, SU and homelessness.Need collaborative work across hostels – need to challenge the feeling that people who use…
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Improving End of Life Care for the future – local models but need to provide support for people (40s+) who want to carry on using substances.Society needs to take more responsibility for…
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Practitioners balancing resource allocation, trying to teach colleagues not to judge whether someone ‘deserves’ care, the unpredictability of death. Fighting for scarce resources:…
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Timing conversations: using the ‘window of opportunity’ after hospital discharge.
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Recording observations over time to identify when health changes occur. Using the SPICT.
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Acknowledging SU sensitively – in the context of managing pain relief. Judging the truth about SU. Maintaining own honesty and giving people the time to trust enough to say. Stigma preventing…
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Staff need for peer support – especially for people outside of medical field, where death is not expected to be part of working life.
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Staff training: what palliative care staff need to know about substance use.
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SU service / partnership working – focus on trauma informed care. The need for a more tolerant society; Multiple challenges: need multi-agency partnerships to ensure wraparound support
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Compassion for people approaching end of life – acknowledging that some provision can be poor for people from marginalised groups
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Examples of people who have been cared for whilst dying; Choice over place of care while dying.
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Support for families when someone dies: Love Jasmine (Support for families in Merseyside who have lost a child)
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Partnership working to support practitioners in providing End of Life Care; Examples of developing good practice.
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